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First blog post
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Author: RarestoftheRare
I am, above all, a mom who would (and has) moved mountains for her son. Remy was born weighing 2 1/2 lbs and spent the first 7 weeks of life in the NICU. We spent his first year searching for answers to life's strangest and most frightening medical puzzles. I wrote a book about Remy's unique journey to help other families who are struggling with the uncertainty of rare disease
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